ALS challenge

[henderson80]

Hi Angels

Are any of you thinking about doing the ALS challenge and putting it up on Facebook?If so please let me know I would like to see those videos.

[Alexus Lin SC1]

I have to reply to this one. My hubby has Lou Gehrigs Disease.
Its a sad and horrible disease and I sure hope with the money they raised that they
will find something to stop or at least slow down the disease. Its a hard road
to be on and I don't know how my hubby can deal with it knowing that his body will
not be able to move and he will be locked in a body, but brain stays perfect.
He knows that his swallowing will get worse and his breathing
as those muscles start to fail and weaken more. Keep him in your prayers.
Thank you, Alexus Lin

[henderson80]

I hope that they find a cure for ALS really soon Alexus.I will say a prayer for your husband.

[innesSC1]

How much water is wasted on the ALS challenge?
Why not spread knowledge in a way that doesn't contribute to wasting money??

There are people in other countries who doesn't have access to clean water at all. And people are just dumping it over their heads?

It's absolutely ridiculous and I do NOT support this ice bucket challenge at all.

[Alexus Lin SC1]

Oh My,
Talking about wasting water, People waste more water everyday in there
homes. Leave water running while they turn around to do something or get
another glass. Not using a water saving toilet, and if they do not have one, fill the space with
a water filled milk container so they use less water. That alone wastes a gallon every time
they flush there toilet. Taking showers for more then 5 min is a huge waste of water. Filling a bath tub
with more then a few inches of water.
I can go on and on with ways water is wasted just in the home. Watering lawns what a huge waste. I have a lawn and it can
turn brown. I do not waste a few thousand gallons watering it.
Car washing another huge waste of Gallons. Here in New York we pay for our water.
Using a bucket of water with ice cubes maybe wasting water to some, but its no comparison
to the waste of water that people waste every day doing every day things, but the ALS challenge
has also given awareness to the dreaded disease ALS. (Lou Gehrigs) Most people have never heard of the disease
or have no clue how horrible it is. This might seem a waste to you, but if you have ALS or know someone
that has the disease or know what the disease is and see how a 225 pound man with strong muscles is now down to 155 cannot dress himself,
cannot get his arms up past mid chest to feed himself, cannot comb his hair, tie a shoe, and so on. I have been watching my hubby
deteriate over the past 5 years. Now his swallowing muscles are getting weaker and breathing is getting harder. So to us the
small amount of water and ice cubes that you say is a waste sure has helped to get donation which never happened before so more research
can be done. So don't you think its time to take a good hard look at how much water a person wastes everyday for no reason.

What one can do to save water, Don't flush your toilet one time during the day and save 5 gallons of water. So the 5 gallons you save you can use
one or two of those to dump on your head and look you still saved water that easy.

This Disease is horrible, just imaging your brain is as alert as when your 25, but you are in a body with arms that do not move. legs do not move,
you cannot swallow you eat with a tube in your stomach, you cannot breath, breathing muscles no longer work so you have a pump pushing air into your
lungs, you cannot go to the bathroom, so bags for that. All the muscles no longer get the signal to move. You cannot even move a finger. You just
look out and see and understand everything and cannot move anything.

I live with this sadness everyday so hearing how its wasting water to get people to donate and become aware of ALS to me and millions of others
is not wasting it. Like I said everytime you don't take a shower, don't water your lawn, let your car stay dirty a bit longer, don't flush the toilet
once when you tinkle or get that gallon container in the tank and save water.

[Beau Jingles]

Saying it is a waste of water is scientifically wrong. The water goes into the ground just like rain water and ends up in the same place rain water does. It doesn't miraculously disappear.

[henderson80]

How much water is wasted on the ALS challenge?
Why not spread knowledge in a way that doesn't contribute to wasting money??

There are people in other countries who doesn't have access to clean water at all. And people are just dumping it over their heads?

It's absolutely ridiculous and I do NOT support this ice bucket challenge at all.

Well well,look who decided to post,miss "I do not care to be on the list" Innes.From her very 1st post I saw that there was an attitude there.

[innesSC1]

I'm just saying there are much better ways to raise awareness than wasting water. I'm not saying it's bad to donate money to this. You should. But how about raising awareness in other ways.

I also disagree with people flushing the toilets regularly, leaving the taps running, etc.
To tell me to stop doing things I already don't do is quite presumptuous and rude.

This is just another way to save water. Some people don't even have access to clean water and here we are just wasting it. It drives me crazy.

And henderson, yeah I have opinions that you disagree with. But remember, your first post was telling all charms how terrible we were. I'm not going to forget that.

Add: dumping water on yourself literally does NOTHING to help anything. Donating money? That'll help with research, supplies, etc. There are TONS of other BETTER ways to "get the word out". How about Crohn's Disease and Ulcerative Colitis Awareness Month? You change your Facebook display picture and link it to a place to donate. I think that's a nice idea.

[Beau Jingles]

Innes,
Unfortunately, you are wrong. This whole ice bucket challenge thing has raised more money so far this year then several other ENTIRE years combined. 1.9 million NEW donors have made a donation. Before you say something isn't working, research it please. The point is, the feeling you get when dumping the water on you is as close to replicating what ALS feels like, as one can get, without having ALS. As of Aug 26th, donations are over $88 million dollars this year. $60 million is within the last 7 days. I'd say that's pretty damn successful.

http://www.alsa.org/news/media/press-re ... 82614.html

[DMarieSC2]

I have accepted a challenge. I have the ice, and the date on which I will be dumping a bucket of ice water over my head very soon!

[Alexus Lin SC1]

As for me being Rude , I would have to say I was not at all.
Where in my statement does it say you? This is what I wrote.....Talking about wasting water, People waste more water everyday in there
homes. Leave water running while they turn around to do something or get
another glass. Not using a water saving toilet, and if they do not have one, fill the space with
a water filled milk container so they use less water. That alone wastes a gallon every time
they flush there toilet. Taking showers for more then 5 min is a huge waste of water. Filling a bath tub
with more then a few inches of water.
I can go on and on with ways water is wasted just in the home. Watering lawns what a huge waste. I have a lawn and it can
turn brown. I do not waste a few thousand gallons watering it.
Car washing another huge waste of Gallons.
It was not meant at you or any one person it was a statement about how many other ways people waste water.
Why would you pick on the ice bucket challenge.


When I read your post about wasting water after my post about the devastating disease ALS
and had explained my hubby has it.
Then reading such negativity into something that has been doing so much good. Was very upsetting to me.

Having Lou gehrigs (ALS) is very painful. As the muscles do not get the signal from the brain, the muscles die.
They shrink and harden like rock. The nerves get pinched between the bones and rock hard muscles. The arms
stop moving, the legs stop moving they become frozen. The swallowing muscles no longer work, you cannot blink
move mouth a finger or any part of the body. You can no longer breath on your own. Its like being locked in a block of ice,
unable to move, not even a finger. The brain stays alert, but you lie there unable to move at all. hooked up to breathing machines, feeding tubes,
waste bags. My husband is on heavy duty meds and suffers in agony everyday and asks God why does he have to suffer like this. Once you
understand the disease and what it is, I do not think there is one that could be worse. Google ALS - Lou Gehrigs Disease and it will put you in tears
when you understand what it is. The last medicine that was found to give a few extra months before your body no longer moves was found in 1954 and
there has been nothing added since. Now with what was donated maybe they will find something.

Well, I am glad most of the world became more aware because of the ice bucket challenge. Over 88 million and still more on the way.
Maybe now they can find something to slow the disease or maybe even a cure. ALS is effecting more people the ever before.

I was always surprised when I said my hubby had ALS, people had no idea what it was, many thought it was getting old and memory loss.
The worst thing is that ALS can effect any one at any age with no warning.

[Alexus Lin SC1]

Hey D, Video tape it.
Hugs

[DMarieSC2]

Hey D, Video tape it.
Hugs

Alex,
Video taping it is a "given"

[wendymeadowssc2]

Personally, I just donated and did not do the challenge. Only because I seriously did not want to be dumped with ice water. I think the ALS challenge has brought a great awareness for something that there wasn't a lot of awareness for. My own personal feeling is that I hope that other organizations can think of ways to bring awareness.

My heart and soul belongs to helping the organizations that help soldier suicide. Did you know that on average 22 soldiers/veterans a day have committed suicide since 2010? That is a lot of wasted life. PTSD is not being treated and soldiers and veterans are left to try to figure out life on their own. My own husband suffers from PTSD and we fight the battle on a daily basis.

So although my time and energy generally goes to supporting and helping veterans organizations build awareness of veteran/soldier suicide, I feel this is a great thing for ALS and the challenge was a great marketing technique to build awareness.

[IzzyCharm]

This has been one of the best pieces of PR for a charity in the last few years. Google searches for what ALS is have gone way up. Don't let me get started on the money that's been raised just since this has started. I did the challenge in my back yard with water I pay monthly for anyway. I was going to water my grass in the first place. I will NEVER understand how people can bitch about something that is HELPING others. Then again some will find fault with anything. I say if it helps raise money and awareness about this horrible illness dump away!!

[hook]

This is a very good thing going on and it is raising awareness , I have to admit when I first heard of this I did not know what it was about, but like everybody else I went online and found out about it, so maybe it is waisting water, but it is also educating people as well and in turn we will git the water back, if will go into the ground, replenishing ground water supplies and will be pumped back out to use again, so really we are not waisting water, what we are waisting is lives from not finding a cure for this disease that before it eventually kills you, it takes all of your dignity away from you, so of dumping a few gallons of water over a persons head raises money for research, educates people on this and leads to a cure down the road, I say don't stop till we dump a river if that is what it takes, we will always git the water back but we will not git the lives back that are lost to this disease

[IzzyCharm]

This is a very good thing going on and it is raising awareness , I have to admit when I first heard of this I did not know what it was about, but like everybody else I went online and found out about it, so maybe it is waisting water, but it is also educating people as well and in turn we will git the water back, if will go into the ground, replenishing ground water supplies and will be pumped back out to use again, so really we are not waisting water, what we are waisting is lives from not finding a cure for this disease that before it eventually kills you, it takes all of your dignity away from you, so of dumping a few gallons of water over a persons head raises money for research, educates people on this and leads to a cure down the road, I say don't stop till we dump a river if that is what it takes, we will always git the water back but we will not git the lives back that are lost to this disease

VERY well said!